New study tests tools to help families share cancer genetic results
NCT ID NCT04763915
First seen Nov 01, 2025 · Last updated Jun 23, 2026 · Updated 31 times
Summary
The IMPACT Study is testing two web-based tools—GeneSHARE and LivingLabReport—to help people with inherited cancer gene variants share their genetic test results with family members and follow cancer screening guidelines. The study involves 720 adults with certain inherited cancer syndromes or variants of uncertain significance. Researchers will measure changes in family communication and adherence to recommended cancer risk management over time.
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Vanderbilt-Ingram Cancer Center
Nashville, Tennessee, 37212, United States
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
Active substance
GeneSHARE web-based toolkit and LivingLabReport website
What this could lead to
If successful, this could lead to better ways for people with inherited cancer risks to inform their relatives and follow recommended screenings.
What could go wrong
This is an observational study testing behavioral tools, not a treatment. Results may not apply to everyone, and improvements in communication may not directly reduce cancer rates.
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.