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New web tool aims to help families navigate tough choices on home ventilation for children

NCT ID NCT06102330

Recruiting now Knowledge-focused Sponsor: Johns Hopkins University Source: ClinicalTrials.gov ↗

First seen Jul 16, 2026 · Last updated Jul 17, 2026 · Updated 1 time

Summary

This study tests a web-based decision-support tool designed to help families and doctors make shared decisions about whether a child should go on chronic home ventilation. Half of the participating families use the tool, while the other half receive usual care. Researchers then measure how prepared parents feel and how well they and their doctors communicate about the decision.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance
HomeVENT decision support tool (web-based decision aid)
What this could lead to
If effective, this tool could help families feel more prepared and improve communication with doctors when making difficult decisions about home ventilation for a child.
What could go wrong
This is a behavioral study, not a drug trial, so the impact is limited to decision-making support. Results may vary by family and setting.

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Conditions

The condition(s) this trial relates to.

childhood acute lymphoblastic leukemia Communication communication disorder Precursor Cell Lymphoblastic Leukemia-Lymphoma respiratory failure

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

COMMUNICATION PEDIATRIC ALL RESPIRATORY INSUFFICIENCY

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Children's Hospital New Orleans

    RECRUITING

    New Orleans, Louisiana, 70118, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Johns Hopkins All Childrens Hospital

    RECRUITING

    Tampa, Florida, 33701, United States

    Contact Email: •••••@•••••

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Johns Hopkins University School of Medicine

    RECRUITING

    Baltimore, Maryland, 21287, United States

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Seattle Childrens Hospital

    RECRUITING

    Seattle, Washington, 98145, United States

    Contact Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

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