Teens and parents share feelings on genetic risk results

NCT ID NCT03832985

First seen Jun 27, 2026 ยท Last updated Jun 27, 2026

Summary

This study explored how teenagers and their parents react emotionally and mentally when they learn about genetic risks for conditions like hereditary breast cancer, Lynch syndrome, or high cholesterol. Researchers surveyed 162 participants using questionnaires and interviews to measure anxiety, depression, family functioning, and quality of life. The goal was to understand the impact of sharing adult-onset genetic results with young people and their families.

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Conditions

The condition(s) this trial relates to.

Colorectal Neoplasms, Hereditary Nonpolyposis familial hypercholesterolemia hereditary breast ovarian cancer syndrome Hyperlipoproteinemia Type II Lynch syndrome

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Geisinger

    Danville, Pennsylvania, 17822, United States