New study tests if booklets help families decide on lynch syndrome genetic testing

NCT ID NCT07106359

First seen Jan 09, 2026 · Last updated May 14, 2026 · Updated 21 times

Summary

This study looks at whether providing education materials helps relatives of people with Lynch syndrome decide about genetic counseling and testing. About 185 adult relatives will be randomly assigned to receive either a standard information letter or a letter plus a booklet. Researchers will track how many people use genetic services and give feedback over 6 months.

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Contacts and locations

Locations

  • UAB

    Birmingham, Alabama, 35233, United States

Conditions

Explore the condition pages connected to this study.