New study paves way for faster FSHD treatments

NCT ID NCT04038138

First seen Nov 01, 2025 · Last updated May 23, 2026 · Updated 30 times

Summary

This study aims to speed up development of new treatments for facioscapulohumeral muscular dystrophy (FSHD) by creating better ways to measure disease progression. Researchers will test two new assessment tools—a functional motor test and a muscle measurement technique—in 100 adults with FSHD over 24 months. The goal is to make future drug trials more efficient and reliable.

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Contacts and locations

Locations

  • CHRU de Lille

    Lille, Hauts-de-France, 59000, France

  • CHU de Nice

    Nice, Provence-Alpes-Côte d'Azur Region, 06000, France

  • Myology institute Association

    Paris, Île-de-France Region, 75013, France

Conditions

Explore the condition pages connected to this study.