New tools aim to speed up FSHD drug trials
NCT ID NCT03458832
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study involves 324 adults with facioscapulohumeral muscular dystrophy (FSHD) across 14 international sites. Researchers are testing two new measurement tools—a functional test called FSHD-COM and a muscle-impedance device—to better track disease progression. The goal is to improve how future drug trials are designed, making them faster and more effective.
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the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
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Centro Clinico NeMO
Milan, 20162, Italy
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Chu De Nice
Nice, 06001, France
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Institut de Myologie
Paris, 75013, France
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Kennedy Krieger Institute
Baltimore, Maryland, 21205, United States
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Ludwig-Maximilians-Universität München
München, 80336, Germany
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Radboud Unviersity
Nijmegen, 6525 XZ, Netherlands
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The Ohio State University
Columbus, Ohio, 43210, United States
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University of California Los Angeles
Los Angeles, California, 90095, United States
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University of College London - Queens Square
London, WC1N 3BG, United Kingdom
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University of Kansas Medical Center
Kansas City, Kansas, 66160, United States
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University of Rochester Medical Center
Rochester, New York, 14642, United States
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University of Utah
Salt Lake City, Utah, 84132, United States
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University of Washington
Seattle, Washington, 98195, United States
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Virginia Commonwealth University
Richmond, Virginia, 23298, United States