New study aims to speed up FSHD drug trials

NCT ID NCT03458832

First seen Apr 23, 2026 · Last updated May 15, 2026 · Updated 3 times

Summary

This study is not testing a new treatment. Instead, it aims to make future drug trials for facioscapulohumeral muscular dystrophy (FSHD) faster and more effective. Researchers are testing new ways to measure muscle function and refining who should be included in trials. 324 adults with FSHD from 14 international sites will participate over 2 years.

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Contacts and locations

Locations

  • Centro Clinico NeMO

    Milan, 20162, Italy

  • Chu De Nice

    Nice, 06001, France

  • Institut de Myologie

    Paris, 75013, France

  • Kennedy Krieger Institute

    Baltimore, Maryland, 21205, United States

  • Ludwig-Maximilians-Universität München

    München, 80336, Germany

  • Radboud Unviersity

    Nijmegen, 6525 XZ, Netherlands

  • The Ohio State University

    Columbus, Ohio, 43210, United States

  • University of California Los Angeles

    Los Angeles, California, 90095, United States

  • University of College London - Queens Square

    London, WC1N 3BG, United Kingdom

  • University of Kansas Medical Center

    Kansas City, Kansas, 66160, United States

  • University of Rochester Medical Center

    Rochester, New York, 14642, United States

  • University of Utah

    Salt Lake City, Utah, 84132, United States

  • University of Washington

    Seattle, Washington, 98195, United States

  • Virginia Commonwealth University

    Richmond, Virginia, 23298, United States

Conditions

Explore the condition pages connected to this study.