New tools aim to speed up FSHD drug trials

NCT ID NCT03458832

Ongoing Knowledge-focused Sponsor: University of Kansas Medical Center Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study involves 324 adults with facioscapulohumeral muscular dystrophy (FSHD) across 14 international sites. Researchers are testing two new measurement tools—a functional test called FSHD-COM and a muscle-impedance device—to better track disease progression. The goal is to improve how future drug trials are designed, making them faster and more effective.

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Conditions

The condition(s) this trial relates to.

facioscapulohumeral muscular dystrophy muscular dystrophy

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY

Contacts and locations

Locations

Centro Clinico NeMO

Milan, 20162, Italy
Chu De Nice

Nice, 06001, France
Institut de Myologie

Paris, 75013, France
Kennedy Krieger Institute

Baltimore, Maryland, 21205, United States
Ludwig-Maximilians-Universität München

München, 80336, Germany
Radboud Unviersity

Nijmegen, 6525 XZ, Netherlands
The Ohio State University

Columbus, Ohio, 43210, United States
University of California Los Angeles

Los Angeles, California, 90095, United States
University of College London - Queens Square

London, WC1N 3BG, United Kingdom
University of Kansas Medical Center

Kansas City, Kansas, 66160, United States
University of Rochester Medical Center

Rochester, New York, 14642, United States
University of Utah

Salt Lake City, Utah, 84132, United States
University of Washington

Seattle, Washington, 98195, United States
Virginia Commonwealth University

Richmond, Virginia, 23298, United States

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