Rare brain tumor registry launches to unlock secrets of ETMR
NCT ID NCT04794686
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study creates a worldwide registry for children diagnosed with Embryonal Tumor with Multilayer Rosettes (ETMR), a rare and aggressive brain tumor. Researchers will collect medical records, tumor tissue, and treatment outcomes from up to 100 patients of any age. The goal is to better understand the disease and evaluate how well a standard treatment plan works.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Hackensack University Medical Center
RECRUITINGHackensack, New Jersey, 07601, United States
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