Rare brain tumor registry launches to unlock secrets of ETMR
NCT ID NCT04794686
First seen Jun 05, 2026 · Last updated Jun 12, 2026 · Updated 2 times
Summary
This study creates a worldwide registry for children diagnosed with Embryonal Tumor with Multilayer Rosettes (ETMR), a rare and aggressive brain tumor. Researchers will collect medical records, tumor tissue, and treatment outcomes from up to 100 patients of any age. The goal is to better understand the disease and evaluate how well a standard treatment plan works.
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the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Hackensack University Medical Center
RECRUITINGHackensack, New Jersey, 07601, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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Conditions inferred from the trial description
These were inferred from the trial's summary, not listed by the trial registrant.