Massive hemophilia study aims to uncover hidden costs and care gaps in china
NCT ID NCT07454239
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study is observing 500 male patients aged 12 and older with severe hemophilia A or B across China. Researchers are collecting data on treatment patterns, costs, and quality of life to understand the true burden of the disease. The goal is to identify gaps in care and help improve access to treatment.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- What this could lead to
- If successful, this study could provide a clearer picture of the real-world needs and costs of hemophilia care in China, helping to improve treatment access and health policies.
- What could go wrong
- This is an observational study, not a treatment trial. It will not test any new drug or therapy, so there is no direct benefit for participants. Results depend on accurate data collection and may not apply to other countries.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
-
Instiute of Hematology and Blood Diseases Hospital CAMS＆PUMC
Tianjin, Tianjin Municipality, 300020, China
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Other studies related to the condition(s) this trial covers.
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