500 hemophilia patients in china to reveal hidden costs and care gaps

NCT ID NCT07454239

First seen Mar 08, 2026 · Last updated May 01, 2026 · Updated 5 times

Summary

This study tracks 500 male patients aged 12 and older with severe hemophilia A or B in China. Researchers will collect data on treatment costs, access to care, and how the disease affects daily life. The goal is to identify gaps in care and help improve treatment for people with hemophilia.

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Contacts and locations

Locations

  • Instiute of Hematology and Blood Diseases Hospital CAMS&PUMC

    Tianjin, Tianjin Municipality, 300020, China

Conditions

Explore the condition pages connected to this study.