NIH launches data repository to fuel future research on rare nerve and muscle diseases

NCT ID NCT05041387

Recruiting now Knowledge-focused Sponsor: National Institute of Neurological Disorders and Stroke (NINDS) Source: ClinicalTrials.gov ↗

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study gathers medical information from 200 adults with possible nerve, muscle, or autonomic nervous system disorders who are not already in other NIH studies. Participants undergo standard tests like nerve conduction studies, EMG, and physical exams. The data is stored anonymously to help researchers generate new ideas for future studies. No experimental treatments are given.

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Conditions

The condition(s) this trial relates to.

autonomic nervous system disorder dysautonomia muscle tissue disorder neurodegenerative disease neuromuscular disease peripheral neuropathy

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

DYSAUTONOMIA MUSCLE DISORDERS NEUROPATHY

Contacts and locations

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Study contacts

Contact

Phone: •••-•••-•••• Email: •••••@•••••
Contact

Phone: •••-•••-•••• Email: •••••@•••••

Locations

National Institutes of Health Clinical Center
RECRUITING

Bethesda, Maryland, 20892, United States

Contact Phone: •••-•••-•••• Email: •••••@•••••