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20,000-Person DNA hunt aims to crack eating disorder code

NCT ID NCT06594913

Knowledge-focused Sponsor: University of North Carolina, Chapel Hill Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now This study
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jul 08, 2026 · Last updated Jul 09, 2026 · Updated 1 time

Summary

This study aims to collect genetic data and detailed symptom histories from 20,000 people with or without eating disorders like anorexia, bulimia, binge-eating disorder, and ARFID. Participants complete questionnaires and provide a saliva sample for DNA analysis. The goal is to identify genetic factors that influence these conditions, which could eventually lead to better treatments. The study prioritizes diversity, aiming to include at least 30% participants from underrepresented groups.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

What this could lead to
If successful, this could uncover genetic links that point toward better treatments or prevention strategies for eating disorders.
What could go wrong
This is an observational study, not a treatment trial. It may not directly lead to new therapies, and genetic findings can take years to translate into clinical use.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

About 20,000 people

The number the study aims to enrol. It can still change while the study runs.

Started

Oct 2024

Expected to finish

Sep 2027

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

Interested individuals from the United States, Mexico, Australia, New Zealand, and Sweden who meet criteria may participate within their respective country.

Ages

12 to 99 years

Sex

Anyone

Healthy volunteers

Accepted

You do not need to have the condition being studied to take part.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * A lifetime history of anorexia nervosa, bulimia nervosa, binge-eating disorder, avoidant restrictive food intake disorders or no history of any disordered eating behavior, based on DSM-5 criteria algorithms * Age 12-99 years, depending on country. (US enrollment age is 18-99) Exclusion Criteria: * History of subthreshold disordered eating behaviors.

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Conditions

The condition(s) this trial relates to.

anorexia nervosa avoidant/restrictive food intake disorder binge eating disorder Binge-Eating Disorder bulimia nervosa Psychological Well-Being

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Anorexia nervosa Avoidant restrictive food intake disorder Binge-eating disorder Bulimia nervosa

How to take part

Only the study team decides who joins. These are the ways to reach them.

  1. The places running it

    5 sites in 5 countries. The list below names each one and where it is.

  2. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  3. A doctor treating you

    A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.

Contacts and locations

Locations

  • Comenzar de Nuevo

    RECRUITING

    Monterrey, Mexico

  • Karolinska Institutet

    RECRUITING

    Stockholm, Sweden

  • QIMR Berghofer

    RECRUITING

    Brisbane, Queensland, Australia

  • University of North Carolina at Chapel Hill

    RECRUITING

    Chapel Hill, North Carolina, 27599-7160, United States

  • University of Otago

    RECRUITING

    Christchurch, Canterbury, New Zealand

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