New canadian registry aims to unlock secrets of rare childhood bowel diseases

NCT ID NCT07603232

First seen Jun 27, 2026 ยท Last updated Jun 27, 2026

Summary

This study creates a long-term registry for children with Hirschsprung's disease or anorectal malformations. It collects health data and family surveys during regular clinic visits to understand outcomes and improve care. No extra tests or procedures are needed. Up to 999 children will be followed until age 18.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary โ€” we know it does not capture everything.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for FECAL INCONTINENCE are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Conditions

The condition(s) this trial relates to.

anorectal malformation Anorectal Malformations Fecal Incontinence Hirschsprung disease

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Muhc-Ri-Muhc

    Montreal, Quebec, Canada