New database aims to unlock secrets of childhood liver disease
NCT ID NCT00061828
First seen Jun 26, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This study is creating a large database of information and samples from 1,000 infants with cholestasis, a condition that causes prolonged jaundice. The goal is to better understand diseases like biliary atresia and find ways to improve care. Researchers will track how the disease progresses over time.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this research could lead to better understanding and treatments for childhood liver diseases.
What could go wrong
This is an observational study, not a treatment trial. It may not directly lead to new therapies, and results depend on long-term follow-up.
Disclaimer
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Ann & Robert H. Lurie Children's Hospital of Chicago
RECRUITINGChicago, Illinois, 60614, United States
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Baylor College of Medicine
RECRUITINGHouston, Texas, 77030, United States
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Children's Healthcare of Atlanta - Emory University
RECRUITINGAtlanta, Georgia, 30322, United States
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Children's Hospital Colorado
RECRUITINGAurora, Colorado, 80045, United States
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Children's Hospital Los Angeles
RECRUITINGLos Angeles, California, 90027, United States
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Children's Hospital of Philadelphia
RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
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Cincinnati Children's Hospital Medical Center
RECRUITINGCincinnati, Ohio, 45229, United States
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Johns Hopkins School of Medicine
COMPLETEDBaltimore, Maryland, 21287, United States
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Mount Sinai Medical Center
COMPLETEDNew York, New York, 10029, United States
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Riley Hospital for Children
COMPLETEDIndianapolis, Indiana, 46202, United States
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Seattle Children's Hospital
RECRUITINGSeattle, Washington, 98105, United States
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The Hospital for Sick Children
COMPLETEDToronto, Ontario, M5G 1X8, Canada
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UPMC Children's Hospital of Pittsburgh
COMPLETEDPittsburgh, Pennsylvania, 15224, United States
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University of California
COMPLETEDSan Francisco, California, 94143, United States
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University of Utah
RECRUITINGSalt Lake City, Utah, 84113, United States
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Washington University School of Medicine
COMPLETEDSt Louis, Missouri, 63110, United States