New database aims to unlock secrets of childhood liver disease

NCT ID NCT00061828

Recruiting now Knowledge-focused Sponsor: Arbor Research Collaborative for Health Source: ClinicalTrials.gov ↗

First seen Jun 26, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study is creating a large database of information and samples from 1,000 infants with cholestasis, a condition that causes prolonged jaundice. The goal is to better understand diseases like biliary atresia and find ways to improve care. Researchers will track how the disease progresses over time.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this research could lead to better understanding and treatments for childhood liver diseases.
What could go wrong: This is an observational study, not a treatment trial. It may not directly lead to new therapies, and results depend on long-term follow-up.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

biliary atresia

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

BILIARY ATRESIA

Contacts and locations

Locations

Ann & Robert H. Lurie Children's Hospital of Chicago
RECRUITING

Chicago, Illinois, 60614, United States
Baylor College of Medicine
RECRUITING

Houston, Texas, 77030, United States
Children's Healthcare of Atlanta - Emory University
RECRUITING

Atlanta, Georgia, 30322, United States
Children's Hospital Colorado
RECRUITING

Aurora, Colorado, 80045, United States
Children's Hospital Los Angeles
RECRUITING

Los Angeles, California, 90027, United States
Children's Hospital of Philadelphia
RECRUITING

Philadelphia, Pennsylvania, 19104, United States
Cincinnati Children's Hospital Medical Center
RECRUITING

Cincinnati, Ohio, 45229, United States
Johns Hopkins School of Medicine
COMPLETED

Baltimore, Maryland, 21287, United States
Mount Sinai Medical Center
COMPLETED

New York, New York, 10029, United States
Riley Hospital for Children
COMPLETED

Indianapolis, Indiana, 46202, United States
Seattle Children's Hospital
RECRUITING

Seattle, Washington, 98105, United States
The Hospital for Sick Children
COMPLETED

Toronto, Ontario, M5G 1X8, Canada
UPMC Children's Hospital of Pittsburgh
COMPLETED

Pittsburgh, Pennsylvania, 15224, United States
University of California
COMPLETED

San Francisco, California, 94143, United States
University of Utah
RECRUITING

Salt Lake City, Utah, 84113, United States
Washington University School of Medicine
COMPLETED

St Louis, Missouri, 63110, United States

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