Massive study aims to unlock secrets of rare liver disease in kids
NCT ID NCT00345553
First seen Nov 01, 2025 · Last updated May 15, 2026 · Updated 31 times
Summary
This study is gathering information and samples from over 1,200 children with biliary atresia, a rare liver disease. Researchers hope to find the genes that cause the disease and learn how it progresses over time in children who still have their own liver. No new treatments are being tested; the goal is simply to better understand the condition.
Disclaimer
Read more
Show less
This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for BILIARY ATRESIA are added.
By submitting, you agree to our Terms of use
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Study contacts
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
-
Ann & Robert H. Lurie Children's Hospital of Chicago
RECRUITINGChicago, Illinois, 60614, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
-
Children's Healthcare of Atlanta - Emory University
RECRUITINGAtlanta, Georgia, 30322, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Contact
Contact
Contact
-
Children's Hospital Colorado
RECRUITINGAurora, Colorado, 80045, United States
Contact
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Contact
-
Children's Hospital Medical Center
RECRUITINGCincinnati, Ohio, 45229, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
-
Children's Hospital of Los Angeles
RECRUITINGLos Angeles, California, 90027, United States
Contact
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
Children's Hospital of Philadelphia
RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
-
Hospital for Sick Children
COMPLETEDToronto, Ontario, M5G 1X8, Canada
-
Johns Hopkins School of Medicine
COMPLETEDBaltimore, Maryland, 21287, United States
-
Mount Sinai Medical Center
COMPLETEDNew York, New York, 10029, United States
-
Riley Children's Hospital
COMPLETEDIndianapolis, Indiana, 46202, United States
-
Seattle Children's Hospital
RECRUITINGSeattle, Washington, 98105, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
Texas Children's Hospital (Baylor College of Medicine)
RECRUITINGHouston, Texas, 77030, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
-
UPMC Children's Hospital of Pittsburgh
RECRUITINGPittsburgh, Pennsylvania, 15224, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
University of California at San Francisco
COMPLETEDSan Francisco, California, 94143, United States
-
University of Utah
RECRUITINGSalt Lake City, Utah, 84113, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
-
Washington University School of Medicine
COMPLETEDSt Louis, Missouri, 63110, United States
Conditions
Explore the condition pages connected to this study.