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New biobank aims to unlock secrets of rare amyloidosis

NCT ID NCT07172243

Recruiting now Knowledge-focused Sponsor: Universitaire Ziekenhuizen KU Leuven Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study is creating a biobank and data registry for people with amyloidosis, a rare disease where abnormal proteins build up in organs. Researchers will collect blood, urine, tissue samples, and medical information from 505 participants over time. The goal is to store these materials for future studies to better understand and treat the disease. No new treatments are being tested; this is purely for research.

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Conditions

The condition(s) this trial relates to.

AL amyloidosis Amyloid Neuropathies, Familial amyloidosis Immunoglobulin Light-chain Amyloidosis

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

AL AMYLOIDOSIS AMYLOIDOSIS AMYLOIDOSIS CARDIAC

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • UZ Leuven Gasthuisberg - cardiology

    RECRUITING

    Leuven, Belgium

    Contact Phone: •••-•••-••••

  • UZ Leuven Gasthuisberg - hematology

    RECRUITING

    Leuven, 3000, Belgium

    Contact

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