Scientists launch study to map rare baker gordon syndrome from childhood to adulthood
NCT ID NCT06399952
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study follows 50 children and adults with Baker Gordon Syndrome, a rare genetic disorder, to track how the condition changes over time. Participants will undergo brain scans, EEGs, and genetic testing, and complete developmental assessments. The goal is to create better tools for diagnosis and monitoring, paving the way for future treatment trials.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- What this could lead to
- If successful, this study could provide the tools and measurements needed to run future clinical trials for treatments.
- What could go wrong
- This is an observational study, not a treatment trial. It will not directly improve symptoms, and results may take years to impact care.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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University of Missouri Columbia
RECRUITINGColumbia, Missouri, 65201, United States
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