New registry aims to unlock secrets of rare brain disease ALD
NCT ID NCT03789721
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study is a national registry for people with adrenoleukodystrophy (ALD), a rare genetic disorder. Researchers will collect medical records and survey data from up to 1,000 patients and their families over time to understand how the disease progresses. The goal is to find better ways to track and predict the disease, but no new treatments are being tested.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Masonic Cancer Center at University of Minnesota
RECRUITINGMinneapolis, Minnesota, 55455, United States
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