Massive biorepository aims to unlock secrets of rare brain diseases
NCT ID NCT03047369
First seen Nov 01, 2025 · Last updated May 01, 2026 · Updated 26 times
Summary
This study is creating a large collection of medical information and biological samples from people with leukodystrophy, a group of rare brain disorders. Researchers will use this data to find new genetic causes, develop better tests, and understand how these diseases progress. The goal is to improve diagnosis and pave the way for future treatments. Anyone with a suspected or confirmed leukodystrophy can join.
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This is a summary of
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Akron Children's Hospital
RECRUITINGAkron, Ohio, 44308, United States
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Ann & Robert H. Lurie Children's Hospital of Chicago
RECRUITINGChicago, Illinois, 60611, United States
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Atrium Health Wake Forest Baptist
RECRUITINGWinston-Salem, North Carolina, 27157, United States
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Baylor College of Medicine (Texas Children's Hospital)
RECRUITINGHouston, Texas, 77030, United States
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Children's Hospital of Los Angeles
RECRUITINGLos Angeles, California, 90027, United States
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Children's Hospital of Orange County
RECRUITINGOrange, California, 92868, United States
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Children's National Medical Center
RECRUITINGWashington D.C., District of Columbia, 20010, United States
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Emory University (Children's Healthcare of Atlanta)
RECRUITINGAtlanta, Georgia, 30342, United States
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Kennedy Krieger Institute
RECRUITINGBaltimore, Maryland, 21205, United States
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Massachusetts General Hospital (MGH)
RECRUITINGBoston, Massachusetts, 02114, United States
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Mayo Clinic
RECRUITINGRochester, Minnesota, 55905, United States
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Nationwide Children's Hospital
RECRUITINGColumbus, Ohio, 43205, United States
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Seattle Children's Hospital
RECRUITINGSeattle, Washington, 98105, United States
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Stanford University (Lucile Packard Children's Hospital)
RECRUITINGPalo Alto, California, 94304, United States
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The Children's Hospital of Philadelphia
RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
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Contact
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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UCSF Benioff Children's Hospital
RECRUITINGSan Francisco, California, 94158, United States
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UT Health Houston
RECRUITINGHouston, Texas, United States
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University of California, Davis (UC Davis Health)
RECRUITINGSacramento, California, 95817, United States
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University of California, San Diego (Rady Children's Hospital)
RECRUITINGSan Diego, California, 92123, United States
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University of Minnesota
RECRUITINGMinneapolis, Minnesota, 55454, United States
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University of Pennsylvania
RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
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University of Pittsburgh Medical Center
RECRUITINGPittsburgh, Pennsylvania, 15219, United States
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University of Utah (Primary Children's Hospital)
RECRUITINGSalt Lake City, Utah, 84112, United States
Contact
Conditions
Explore the condition pages connected to this study.