ALEXANDER DISEASE
Clinical trials for ALEXANDER DISEASE explained in plain language.
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Massive global hunt for answers to devastating brain diseases
Knowledge-focused Recruiting nowThis study aims to collect medical information and biological samples from 12,000 people worldwide with rare genetic brain disorders called leukodystrophies. Researchers will use this data to better understand these diseases, improve diagnosis, and identify targets for future tre…
Matched conditions: ALEXANDER DISEASE
Sponsor: Children's Hospital of Philadelphia • Aim: Knowledge-focused
Last updated Mar 25, 2026 14:09 UTC
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Researchers map the journey of a rare brain disease
Knowledge-focused Recruiting nowThis study aims to understand the natural progression of Alexander Disease, a rare disorder that affects the brain and nervous system. Researchers will follow 200 patients over time, tracking changes in their movement, speech, swallowing, and quality of life. The information gath…
Matched conditions: ALEXANDER DISEASE
Sponsor: Children's Hospital of Philadelphia • Aim: Knowledge-focused
Last updated Mar 04, 2026 15:29 UTC