New study tracks alexander disease to pave way for future treatments
NCT ID NCT02714764
First seen Jan 18, 2026 · Last updated May 07, 2026 · Updated 13 times
Summary
This study follows 200 people with Alexander Disease, a rare brain disorder, to see how symptoms like movement, speech, and swallowing change over time. Researchers collect samples and test results to better understand the disease. The information gathered will help design future treatment trials.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Children's Hospital of Philadelphia
RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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