ALD (ADRENOLEUKODYSTROPHY)
Clinical trials for ALD (ADRENOLEUKODYSTROPHY) explained in plain language.
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New ALD registry aims to unlock secrets of rare disease
Knowledge-focused Recruiting nowThis study is building a national registry of people with adrenoleukodystrophy (ALD) and their family members. Researchers will collect medical records and survey data every six months to understand how the disease progresses and to find biological markers. No treatment is given;…
Matched conditions: ALD (ADRENOLEUKODYSTROPHY)
Sponsor: Masonic Cancer Center, University of Minnesota • Aim: Knowledge-focused
Last updated May 15, 2026 11:56 UTC
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Massive leukodystrophy biobank aims to unlock disease secrets
Knowledge-focused Recruiting nowThis study collects medical information and biological samples from up to 12,000 people with leukodystrophies—rare brain disorders affecting white matter. Researchers will use this data to find new genetic causes, develop biomarkers, and better understand how these diseases progr…
Matched conditions: ALD (ADRENOLEUKODYSTROPHY)
Sponsor: Children's Hospital of Philadelphia • Aim: Knowledge-focused
Last updated May 13, 2026 16:02 UTC