New program eases emotional burden for parents of kids with rare diseases
NCT ID NCT06548022
First seen Apr 01, 2026 · Last updated Apr 29, 2026 · Updated 6 times
Summary
This study tested a 5-week group program called Rare Group Problem Management Plus (PM+) for parents or guardians of children with rare conditions. The program, delivered by video visits, teaches practical and emotional coping skills. Eight caregivers took part, and the study checked if they found the program helpful and easy to stick with.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Children's National Hospital
Washington D.C., District of Columbia, 20010, United States
Conditions
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