Heart gene study tracks disease without treatment
NCT ID NCT06644742
First seen Oct 31, 2025 · Last updated Apr 30, 2026 · Updated 19 times
Summary
This study follows 36 people aged 12 and older who have a genetic heart condition called PKP2-ACM. Researchers will monitor heart rhythms, biomarkers, and quality of life over time to understand how the disease naturally progresses under standard care. No new treatments are given; the goal is to gather information for future research.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Amsterdam UMC
NOT_YET_RECRUITINGAmsterdam, 1105 AZ, Netherlands
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Boston Children's Hospital
RECRUITINGBoston, Massachusetts, 02116, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
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Duke University
RECRUITINGDurham, North Carolina, 27710, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Conditions
Explore the condition pages connected to this study.