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Massive pediatric cancer registry aims to unlock tumor secrets

NCT ID NCT04715178

Knowledge-focused Sponsor: Giselle Sholler Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now This study
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study is creating a large database of tumor samples and health information from children and young adults with cancer. Researchers will analyze the genetic makeup of these tumors to find patterns and potential new treatments. The goal is to better understand pediatric cancers and improve care for future patients.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

About 1,000 people

The number the study aims to enrol. It can still change while the study runs.

Started

Feb 2021

Expected to finish

Jan 2032

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

Pediatric cancer subjects, survivorship, and healthy volunteers at The Pennsylvania State University and participating Beat Childhood Cancer Research Consortium sites.

Ages

Children (under 18), adults (18 to 64) and older adults (65 and over)

Sex

Anyone

Healthy volunteers

Accepted

You do not need to have the condition being studied to take part.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * No age restrictions * Subjects that fit into one of the following categories: 1. Subjects with suspected or confirmed cancers of childhood, adolescence, or young adulthood. 2. Survivors of a cancer of childhood, adolescence, or young adulthood (\> 6 months off last therapy for cancer) 3. Subjects with a disease-matched condition 4. Healthy volunteers- including any participants with medical conditions that are not disease-matched. * Written informed consent in accordance with institutional and FDA guidelines must be obtained from all subjects (or subjects' legal representative). Exclusion Criteria: * Subject or his/her legally authorized representative (where applicable) did not consent for specimen banking and data collection for this study.

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Conditions

The condition(s) this trial relates to.

childhood malignant neoplasm neoplasm

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Pediatric cancer Survivorship

How to take part

Only the study team decides who joins. These are the ways to reach them.

  1. The places running it

    17 sites. The list below names each one and where it is.

  2. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  3. A doctor treating you

    A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.

Contacts and locations

Locations

  • AH Wake Forest Baptist - Brenner Children's Hospital

    RECRUITING

    Winston-Salem, North Carolina, 27157, United States

  • Arkansas Children's Hospital

    RECRUITING

    Little Rock, Arkansas, 72202, United States

  • Arnold Palmer Hospital for Children

    RECRUITING

    Orlando, Florida, 32806, United States

  • Cardinal Glennon Children's Hospital

    RECRUITING

    St Louis, Missouri, 63104, United States

  • Children's Hospital and Clinics of Minnesota

    RECRUITING

    Minneapolis, Minnesota, 55404, United States

  • Children's Hospital of The King's Daughters

    RECRUITING

    Norfolk, Virginia, 23507, United States

  • Children's Mercy Hospitals and Clinics

    RECRUITING

    Kansas City, Missouri, 64108, United States

  • Connecticut Children's Hospital

    RECRUITING

    Hartford, Connecticut, 06106, United States

  • Dell Children's Blood and Cancer Center

    RECRUITING

    Austin, Texas, 78723, United States

  • Levine Children's Hospital

    COMPLETED

    Charlotte, North Carolina, 28204, United States

  • Medical University of South Carolina

    RECRUITING

    Charleston, South Carolina, 29425, United States

  • Nicklaus Children's Miami

    RECRUITING

    Miami, Florida, 33155, United States

  • Norton Children's Research Institute/Affiliated with University of Louisville School of Medicine

    RECRUITING

    Louisville, Kentucky, 40292, United States

  • Penn State Milton S. Hershey Medical Center and Children's Hospital

    RECRUITING

    Hershey, Pennsylvania, 17033, United States

  • Rady Children's Hospital

    RECRUITING

    San Diego, California, 92123, United States

  • Randall Children's Hospital

    RECRUITING

    Portland, Oregon, 97227, United States

  • St. Joseph's Children's Hospital

    RECRUITING

    Tampa, Florida, 33614, United States

  • University of Iowa

    RECRUITING

    Iowa City, Iowa, 52242, United States

More trials for these conditions

Other studies related to the condition(s) this trial covers.