Russian study aims to map neurofibromatosis in adults
NCT ID NCT07088991
First seen Nov 01, 2025 · Last updated May 24, 2026 · Updated 32 times
Summary
This study is gathering information about 200 adults in Russia who have neurofibromatosis type 1 (NF1) with plexiform neurofibromas. Researchers will collect data on patients' age, symptoms, medical history, and other health conditions. The goal is to better understand the disease and its impact, not to test a new treatment.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Research Site
RECRUITINGArkhangelsk, Russia
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Research Site
RECRUITINGChelyabinsk, Russia
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Research Site
RECRUITINGKrasnoyarsk, Russia
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Research Site
RECRUITINGKurgan, Russia
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Research Site
RECRUITINGMoscow, Russia
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Research Site
RECRUITINGNizhny Novgorod, Russia
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Research Site
RECRUITINGNovosibirsk, Russia
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Research Site
RECRUITINGOrenburg, Russia
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Research Site
RECRUITINGSaint-Peretsburg, Russia
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Research Site
RECRUITINGSamara, Russia
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Research Site
RECRUITINGTomsk, Russia
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Research Site
RECRUITINGUfa, Russia
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Research Site
RECRUITINGYekaterinburg, Russia
Conditions
Explore the condition pages connected to this study.