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Can a One-Page guide spark better End-of-Life talks for dementia patients?

NCT ID NCT05596760

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing This study
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Sep 21, 2026 · Updated 1 time

Summary

This study tests a short guide called the 'Jumpstart Guide' to help doctors have better conversations with dementia patients and their families about healthcare goals. Over 1,800 patients and their caregivers are taking part. Researchers will compare whether those whose doctors used the guide had more documented discussions about care preferences.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

Active substance
Jumpstart Guide (a communication-priming behavioral intervention)
What this could lead to
If successful, this could provide a practical tool to help doctors routinely discuss patients' healthcare wishes, improving care alignment and reducing distress for families.
What could go wrong
This is a behavioral study, not a drug trial, so it won't change the disease itself. Success depends on clinicians using the guide, and results may not apply outside this setting.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Phase

Not a phased trial

Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.

Participants

1,802 people

The number who actually took part.

Started

Sep 2023

Expected to finish

Jul 2027

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Ages

18 years and older

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

PATIENTS Inclusion Criteria: * Be cared for as an outpatient at a UW Medicine clinic * 55 years of age or older * Have an ICD-10 code for ADRD documented in the EHR within the prior two years If patients are cared for in a primary care setting within UW Medicine or by a geriatrician or neurologist, only a diagnosis of ADRD is required for eligibility. If patients have ADRD and are not followed by a primary care clinician at UW Medicine but are followed by a subspecialist, eligible patients must also have an ICD-10 code for one or more of seven chronic conditions used by the Dartmouth Atlas, relevant for the specialist they see, to ensure that goals-of care discussions are applicable for these specialists in the care of the enrolled patient. These conditions by specialist are: malignant cancer/leukemia (oncologist), chronic pulmonary disease (pulmonologist), coronary artery disease or heart failure (cardiologist), chronic liver disease (hepatologist), chronic renal disease (nephrologist), and diabetes with end-organ damage (endocrinologist). Exclusion Criteria: * restricted status, legal or risk management concerns * without capacity to complete informed consent procedures and without a legal surrogate to enroll them (for the survey component or qualitative interviews) * non-English speaking (for the survey component or qualitative interviews) * patients of a clinician who has opted-out of the study will not be eligible for the study under the care of that clinician but may be eligible if they also receive care from another clinician in a participating clinic FAMILY MEMBERS Inclusion Criteria: * Identified (via the patient or the EHR) as the person most involved in care for an eligible patient in the trial * 18 years of age or older * English language proficiency Exclusion Criteria: * legal or risk management concerns * psychological illness or morbidity preventing completion of study materials * physical or mental limitations preventing completion of study materials * non-English speaking Not all patients will have an eligible family member to enroll. CLINICIANS Inclusion Criteria: * Physician or advance practice provider caring for older adults within UW Medicine clinics * 18 years of age or older * English language proficiency * (Interviews) Identified as clinician of record for an enrolled patient in the trial and received a Jumpstart guide Exclusion Criteria: * legal or risk management concerns

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Conditions

The condition(s) this trial relates to.

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Harborview Medical Center

    Seattle, Washington, 98104, United States

  • UW Medical Center

    Seattle, Washington, 98195, United States

  • UW Medicine Neighborhood Clinics

    Seattle, Washington, 98195, United States

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