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Gene hunt for rare paralysis disorder launches at boston Children's

NCT ID NCT05354622

First seen Mar 24, 2026 · Last updated Jun 22, 2026 · Updated 16 times

Summary

This study aims to uncover the genetic causes of hereditary spastic paraplegia (HSP), a group of rare neurological diseases that cause progressive muscle stiffness and disability. Researchers will analyze DNA from 200 participants with progressive spasticity to find genetic variants linked to the condition. The goal is to improve diagnosis and eventually develop better treatments based on each person's genetic subtype.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Boston Children's Hospital

    RECRUITING

    Boston, Massachusetts, 02115, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to

If successful, this study could identify genetic causes of HSP, paving the way for targeted treatments in the future.

What could go wrong

This is an observational study, not a treatment trial. It may not directly benefit participants, and genetic findings may take years to translate into therapies.

Conditions

The condition(s) this trial relates to.

hereditary disease hereditary spastic paraplegia hereditary spastic paraplegia 26 hereditary spastic paraplegia 3A motor neuron disorder movement disorder Muscle Spasticity musculoskeletal system disorder neurodegenerative disease neurodevelopmental disorder

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.