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Major study tracks kids with rare kidney disease to unlock better care

NCT ID NCT04207580

Knowledge-focused Sponsor: University Hospital, Limoges Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now This study
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study follows up to 1,180 children in France with a rare kidney condition called idiopathic nephrotic syndrome. Researchers will collect information on disease patterns, treatments, and side effects to build a detailed database. The goal is to better understand the disease and create a foundation for future clinical trials. No new treatments are being tested in this study.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

About 1,180 people

The number the study aims to enrol. It can still change while the study runs.

Started

Mar 2020

Expected to finish

Jan 2048

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

Pediatric idiopathic nephrotic syndrome

Ages

Up to 18 years

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Patient under 18 years of age * With idiopathic nephrotic syndrome (according to SPN criteria) beginning after January 1, 2018 * Child seen at least once in consultation or hospitalization by a pediatrician member of the Society of Pediatric Nephrology * Residing in France * Consent signed by parents and patient's agreement to participate (if of age) * Affiliated to a social security system. Exclusion Criteria: * Refusal of the patient or legal representatives to participate in the cohort

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Conditions

The condition(s) this trial relates to.

idiopathic nephrotic syndrome lipoid nephrosis

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Idiopathic nephrotic syndrome

How to take part

Only the study team decides who joins. These are the ways to reach them.

  1. The places running it

    47 sites in 2 countries. The list below names each one and where it is.

  2. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  3. A doctor treating you

    A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.

Contacts and locations

Locations

  • AP-HP Necker

    RECRUITING

    Paris, 75743, France

  • AP-HP Robert Debré

    RECRUITING

    Paris, 75019, France

  • AP-HP Trousseau

    RECRUITING

    Paris, 75012, France

  • CH d'Agen

    RECRUITING

    Agen, 47000, France

  • CH d'Annecy

    RECRUITING

    Pringy, 74374, France

  • CH de Chambéry

    RECRUITING

    Chambéry, 73011, France

  • CH de Macon

    RECRUITING

    Mâcon, 71018, France

  • CH de Pau

    RECRUITING

    Pau, 64000, France

  • CH de Perpignan

    RECRUITING

    Perpignan, 66000, France

  • CH de Périgueux

    RECRUITING

    Périgueux, 24000, France

  • CH de Roanne

    NOT_YET_RECRUITING

    Roanne, 42300, France

  • CH de Roubaix

    RECRUITING

    Roubaix, 59100, France

  • CH de Sallanches

    TERMINATED

    Sallanches, 74700, France

  • CH de Toulon

    RECRUITING

    Toulon, 83056, France

  • CH de Vannes

    NOT_YET_RECRUITING

    Vannes, 56000, France

  • CH de Versaille

    RECRUITING

    Le Chesnay, 78150, France

  • CH de Villefranche

    RECRUITING

    Villefranche-sur-Saône, 69655, France

  • CH de Voiron

    RECRUITING

    Voiron, 38500, France

  • CH de la Rochelle

    RECRUITING

    La Rochelle, 17019, France

  • CH de la côte basque

    RECRUITING

    Bayonne, 64100, France

  • CH du Val d'Ariège

    RECRUITING

    Foix, 09000, France

  • CHRU de Strasbourg

    RECRUITING

    Strasbourg, 67200, France

  • CHU d'Amiens

    RECRUITING

    Amiens, 80000, France

  • CHU d'Auxerre

    RECRUITING

    Auxerre, 89000, France

  • CHU de Besançon

    RECRUITING

    Besançon, 25000, France

  • CHU de Boredeaux

    RECRUITING

    Bordeaux, 33000, France

  • CHU de Brest

    RECRUITING

    Brest, 29609, France

  • CHU de Clermont Ferrand

    RECRUITING

    Clermont-Ferrand, 63000, France

  • CHU de Dijon

    RECRUITING

    Dijon, 21079, France

  • CHU de Grenoble

    RECRUITING

    La Tronche, 38700, France

  • CHU de La Réunion - Félix Guyon

    RECRUITING

    Saint-Denis, 97400, Reunion

  • CHU de Lille - Hôpital Jeanne de Flandre

    RECRUITING

    Lille, 59037, France

  • CHU de Marseille - Timone enfants

    RECRUITING

    Marseille, 13385, France

  • CHU de Montpellier - Hôpital Arnaud de Villeneuve

    RECRUITING

    Montpellier, 34090, France

  • CHU de Nancy

    RECRUITING

    Nancy, 54500, France

  • CHU de Nantes

    RECRUITING

    Nantes, 44093, France

  • CHU de Nice - Hopital Larchet

    RECRUITING

    Nice, 06200, France

  • CHU de Nimes

    RECRUITING

    Nîmes, 30900, France

  • CHU de Poitiers

    RECRUITING

    Poitiers, 86000, France

  • CHU de Reims

    RECRUITING

    Reims, 57092, France

  • CHU de Rennes

    RECRUITING

    Rennes, 35203, France

  • CHU de Rouen

    RECRUITING

    Rouen, 76031, France

  • CHU de Saint-Etienne

    RECRUITING

    Saint-Priest-en-Jarez, 42270, France

  • CHU de Toulouse

    RECRUITING

    Toulouse, 31300, France

  • CHU de Tours

    RECRUITING

    Tours, 37000, France

  • CHU de la Réunion

    RECRUITING

    Saint-Pierre, 97448, Reunion

  • HCL Lyon

    RECRUITING

    Bron, 69500, France

  • Limoges Hospital

    RECRUITING

    Limoges, 87 042, France

More trials for these conditions

Other studies related to the condition(s) this trial covers.