Major study tracks kids with rare kidney disease to unlock better care
NCT ID NCT04207580
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study follows up to 1,180 children in France with a rare kidney condition called idiopathic nephrotic syndrome. Researchers will collect information on disease patterns, treatments, and side effects to build a detailed database. The goal is to better understand the disease and create a foundation for future clinical trials. No new treatments are being tested in this study.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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AP-HP Necker
RECRUITINGParis, 75743, France
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AP-HP Robert Debré
RECRUITINGParis, 75019, France
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AP-HP Trousseau
RECRUITINGParis, 75012, France
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CH d'Agen
RECRUITINGAgen, 47000, France
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CH d'Annecy
RECRUITINGPringy, 74374, France
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CH de Chambéry
RECRUITINGChambéry, 73011, France
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CH de Macon
RECRUITINGMâcon, 71018, France
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CH de Pau
RECRUITINGPau, 64000, France
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CH de Perpignan
RECRUITINGPerpignan, 66000, France
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CH de Périgueux
RECRUITINGPérigueux, 24000, France
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CH de Roanne
NOT_YET_RECRUITINGRoanne, 42300, France
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CH de Roubaix
RECRUITINGRoubaix, 59100, France
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CH de Sallanches
TERMINATEDSallanches, 74700, France
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CH de Toulon
RECRUITINGToulon, 83056, France
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CH de Vannes
NOT_YET_RECRUITINGVannes, 56000, France
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CH de Versaille
RECRUITINGLe Chesnay, 78150, France
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CH de Villefranche
RECRUITINGVillefranche-sur-Saône, 69655, France
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CH de Voiron
RECRUITINGVoiron, 38500, France
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CH de la Rochelle
RECRUITINGLa Rochelle, 17019, France
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CH de la côte basque
RECRUITINGBayonne, 64100, France
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CH du Val d'Ariège
RECRUITINGFoix, 09000, France
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CHRU de Strasbourg
RECRUITINGStrasbourg, 67200, France
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CHU d'Amiens
RECRUITINGAmiens, 80000, France
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CHU d'Auxerre
RECRUITINGAuxerre, 89000, France
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CHU de Besançon
RECRUITINGBesançon, 25000, France
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CHU de Boredeaux
RECRUITINGBordeaux, 33000, France
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CHU de Brest
RECRUITINGBrest, 29609, France
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CHU de Clermont Ferrand
RECRUITINGClermont-Ferrand, 63000, France
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CHU de Dijon
RECRUITINGDijon, 21079, France
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CHU de Grenoble
RECRUITINGLa Tronche, 38700, France
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CHU de La Réunion - Félix Guyon
RECRUITINGSaint-Denis, 97400, Reunion
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CHU de Lille - Hôpital Jeanne de Flandre
RECRUITINGLille, 59037, France
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CHU de Marseille - Timone enfants
RECRUITINGMarseille, 13385, France
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CHU de Montpellier - Hôpital Arnaud de Villeneuve
RECRUITINGMontpellier, 34090, France
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CHU de Nancy
RECRUITINGNancy, 54500, France
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CHU de Nantes
RECRUITINGNantes, 44093, France
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CHU de Nice - Hopital Larchet
RECRUITINGNice, 06200, France
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CHU de Nimes
RECRUITINGNîmes, 30900, France
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CHU de Poitiers
RECRUITINGPoitiers, 86000, France
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CHU de Reims
RECRUITINGReims, 57092, France
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CHU de Rennes
RECRUITINGRennes, 35203, France
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CHU de Rouen
RECRUITINGRouen, 76031, France
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CHU de Saint-Etienne
RECRUITINGSaint-Priest-en-Jarez, 42270, France
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CHU de Toulouse
RECRUITINGToulouse, 31300, France
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CHU de Tours
RECRUITINGTours, 37000, France
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CHU de la Réunion
RECRUITINGSaint-Pierre, 97448, Reunion
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HCL Lyon
RECRUITINGBron, 69500, France
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Limoges Hospital
RECRUITINGLimoges, 87 042, France
More trials for these conditions
Other studies related to the condition(s) this trial covers.
- Kidney disease biobank aims to unlock new treatments
- New drug aims to calm immune attacks on kidneys
- New app aims to simplify kidney disease management for kids
- Could a 12-week steroid course be enough for kidney disease?
- Could your gut bacteria trigger kidney disease? new study investigates
- New kidney disease registry aims to unlock secrets of FSGS and MCD