New kidney disease registry aims to unlock secrets of FSGS and MCD

NCT ID NCT03949972

Recruiting now Knowledge-focused Sponsor: Prof. Dr. Paul Brinkkoetter Source: ClinicalTrials.gov ↗

First seen Jun 26, 2026 · Last updated Jun 26, 2026

Summary

This registry is gathering health information and biological samples from 500 people with focal segmental glomerulosclerosis (FSGS) or minimal change disease (MCD), two rare kidney conditions. Researchers will track participants over 10 years to understand how these diseases progress and affect quality of life. The goal is to build a resource that can help future studies find better ways to diagnose and treat these conditions.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this registry could provide the data and samples needed to develop better diagnostics and treatments for FSGS and MCD.
What could go wrong: This is an observational registry, not a treatment trial. It will not directly test any therapy, and results may take years to impact patient care.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

focal segmental glomerulosclerosis idiopathic nephrotic syndrome lipoid nephrosis macular corneal dystrophy nephrotic syndrome

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

GLOMERULOSCLEROSIS, FOCAL SEGMENTAL IDIOPATHIC NEPHROTIC SYNDROME MINIMAL CHANGE DISEASE

Contacts and locations

Locations

Charité University Hospital
RECRUITING

Berlin, Germany
Kindernephrologie Dachau
RECRUITING

Dachau, 85221, Germany
Kindernierenzentrum Bonn
RECRUITING

Bonn, 53127, Germany
Klinikum St. Georg
RECRUITING

Leipzig, 04129, Germany
Klinikum Stuttgart
RECRUITING

Stuttgart, 70174, Germany
Uniklinik RWTH Aachen
NOT_YET_RECRUITING

Aachen, 52074, Germany
University Hospital Erlangen
NOT_YET_RECRUITING

Erlangen, Germany
University Hospital Essen
RECRUITING

Essen, 45147, Germany
University Hospital Heidelberg
RECRUITING

Heidelberg, 69120, Germany
University Hospital Marburg
RECRUITING

Marburg, Germany
University Hospital Münster
RECRUITING

Münster, Germany
University Hospital of Cologne
RECRUITING

Cologne, North Rhine-Westphalia, 50937, Germany

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