New kidney disease registry aims to unlock secrets of FSGS and MCD
NCT ID NCT03949972
First seen Jun 26, 2026 · Last updated Jun 26, 2026
Summary
This registry is gathering health information and biological samples from 500 people with focal segmental glomerulosclerosis (FSGS) or minimal change disease (MCD), two rare kidney conditions. Researchers will track participants over 10 years to understand how these diseases progress and affect quality of life. The goal is to build a resource that can help future studies find better ways to diagnose and treat these conditions.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this registry could provide the data and samples needed to develop better diagnostics and treatments for FSGS and MCD.
What could go wrong
This is an observational registry, not a treatment trial. It will not directly test any therapy, and results may take years to impact patient care.
Disclaimer
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
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Locations
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Charité University Hospital
RECRUITINGBerlin, Germany
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Kindernephrologie Dachau
RECRUITINGDachau, 85221, Germany
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Kindernierenzentrum Bonn
RECRUITINGBonn, 53127, Germany
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Contact Phone: •••-•••-•••• Email: •••••@•••••
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Klinikum St. Georg
RECRUITINGLeipzig, 04129, Germany
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Klinikum Stuttgart
RECRUITINGStuttgart, 70174, Germany
Contact Email: •••••@•••••
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Uniklinik RWTH Aachen
NOT_YET_RECRUITINGAachen, 52074, Germany
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University Hospital Erlangen
NOT_YET_RECRUITINGErlangen, Germany
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University Hospital Essen
RECRUITINGEssen, 45147, Germany
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University Hospital Heidelberg
RECRUITINGHeidelberg, 69120, Germany
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University Hospital Marburg
RECRUITINGMarburg, Germany
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University Hospital Münster
RECRUITINGMünster, Germany
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University Hospital of Cologne
RECRUITINGCologne, North Rhine-Westphalia, 50937, Germany
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Contact Phone: •••-•••-•••• Email: •••••@•••••
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Contact Phone: •••-•••-•••• Email: •••••@•••••