New registry aims to unlock secrets of rare kidney diseases
NCT ID NCT03949972
First seen Nov 01, 2025 · Last updated May 02, 2026 · Updated 26 times
Summary
This study is creating a registry of 500 people with two rare kidney diseases—FSGS and minimal change disease—to track their health over 10 years. Researchers will collect blood, urine, and tissue samples to better understand what causes these conditions and how they progress. The goal is to improve diagnosis and treatment in the future.
Disclaimer
Read more
Show less
This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for GLOMERULOSCLEROSIS, FOCAL SEGMENTAL are added.
By submitting, you agree to our Terms of use
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Study contacts
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
-
Charité University Hospital
RECRUITINGBerlin, Germany
Contact
Contact Email: •••••@•••••
Contact
Contact
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
-
Kindernephrologie Dachau
RECRUITINGDachau, 85221, Germany
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
-
Kindernierenzentrum Bonn
RECRUITINGBonn, 53127, Germany
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
Klinikum St. Georg
RECRUITINGLeipzig, 04129, Germany
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
-
Klinikum Stuttgart
RECRUITINGStuttgart, 70174, Germany
Contact Email: •••••@•••••
Contact Email: •••••@•••••
Contact
-
Uniklinik RWTH Aachen
NOT_YET_RECRUITINGAachen, 52074, Germany
Contact Email: •••••@•••••
Contact
Contact Email: •••••@•••••
-
University Hospital Erlangen
NOT_YET_RECRUITINGErlangen, Germany
Contact Email: •••••@•••••
Contact Email: •••••@•••••
-
University Hospital Essen
RECRUITINGEssen, 45147, Germany
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Contact
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
University Hospital Heidelberg
RECRUITINGHeidelberg, 69120, Germany
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
University Hospital Marburg
RECRUITINGMarburg, Germany
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
-
University Hospital Münster
RECRUITINGMünster, Germany
Contact Email: •••••@•••••
Contact
Contact Email: •••••@•••••
Contact
-
University Hospital of Cologne
RECRUITINGCologne, North Rhine-Westphalia, 50937, Germany
Contact
Contact
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.