Kidney disease mystery: scientists launch massive data hunt
NCT ID NCT01209000
First seen Jun 11, 2026
Summary
This study is for people with rare kidney diseases like Minimal Change Disease, Focal Segmental Glomerulosclerosis, and Membranous Nephropathy. Researchers will collect health information and biological samples from 1,200 participants over many years. The goal is to better understand these diseases and improve future treatments, not to test a new drug or cure.
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
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Locations
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Atrium Health Levine Children's Hospital
RECRUITINGCharlotte, North Carolina, 28203, United States
Contact Email: •••••@•••••
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Bellevue Hospital
RECRUITINGNew York, New York, 10016, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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CS Mott Children's Hospital, University of Michigan
RECRUITINGAnn Arbor, Michigan, 48109, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Children's Hospital Colorado
NOT_YET_RECRUITINGAurora, Colorado, 80045, United States
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Contact Email: •••••@•••••
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Children's Hospital of Philadelphia
RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
Contact Email: •••••@•••••
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Children's Mercy Hospital
RECRUITINGKansas City, Missouri, 64108, United States
Contact Email: •••••@•••••
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Cleveland Clinic
RECRUITINGCleveland, Ohio, 44195, United States
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Contact Email: •••••@•••••
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Cohen Children's Hospital
RECRUITINGNew Hyde Park, New York, 11040, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Columbia University Medical Center
RECRUITINGNew York, New York, 10032, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Credit Valley Hospital
RECRUITINGToronto, Ontario, L5M 2N1, Canada
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Emory University and Children's Healthcare of Atlanta
RECRUITINGAtlanta, Georgia, 30322, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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John Stroger Cook County Hospital
RECRUITINGChicago, Illinois, 60680, United States
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Contact Phone: •••-•••-•••• Email: •••••@•••••
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Johns Hopkins Medical Institute
RECRUITINGBaltimore, Maryland, 21287, United States
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Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Kidney Disease Section, NIDDK, NIH
COMPLETEDBethesda, Maryland, 20892, United States
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Lundquist Biomedical Research Institute at Harbor UCLA Medical Center
RECRUITINGTorrance, California, 90502, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Mayo Clinic
COMPLETEDRochester, Minnesota, 55905, United States
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Medical University of South Carolina
RECRUITINGCharleston, South Carolina, 29425, United States
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MetroHealth Hospital at Case Western Medical Center
COMPLETEDCleveland, Ohio, 44109, United States
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Montefiore Medical Center
RECRUITINGThe Bronx, New York, 11040, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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New York University Medical Center
RECRUITINGNew York, New York, 10010, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Contact Email: •••••@•••••
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New York University Veterans Administration
RECRUITINGNew York, New York, 10016, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Providence Medical Research Center
RECRUITINGSpokane, Washington, 99204, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Contact Phone: •••-•••-•••• Email: •••••@•••••
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Scarborough Hospital
COMPLETEDScarborough Village, Ontario, M1H 3G4, Canada
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Seattle Children's Hospital
RECRUITINGSeattle, Washington, 98145, United States
Contact Email: •••••@•••••
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Stanford University School of Medicine
RECRUITINGPalo Alto, California, 94304, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Sunnybrook Hospital
RECRUITINGToronto, Ontario, M4N 3M5, Canada
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Temple University
RECRUITINGPhiladelphia, Pennsylvania, 19140, United States
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Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Texas Children's Hospital - Baylor College of Medicine
RECRUITINGHouston, Texas, 77030, United States
Contact Email: •••••@•••••
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The Ohio State University Wexner Medical Center
RECRUITINGColumbus, Ohio, 43210, United States
Contact Email: •••••@•••••
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University Health Network
RECRUITINGToronto, Ontario, M5G2C4, Canada
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Contact
Contact Email: •••••@•••••
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University Hospital Rainbow Babies & Children's Hospital
COMPLETEDCleveland, Ohio, 44106, United States
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University of California San Francisco Benioff Children's Hospitals
NOT_YET_RECRUITINGSan Francisco, California, 94158, United States
Contact Email: •••••@•••••
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University of Colorado Anschutz School of Medicine
NOT_YET_RECRUITINGAurora, Colorado, 80045, United States
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Contact Email: •••••@•••••
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University of Kansas Medical Center
RECRUITINGKansas City, Kansas, 66160, United States
Contact Email: •••••@•••••
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University of Miami Miller School of Medicine
RECRUITINGMiami, Florida, 33136, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Michigan Medical Center
RECRUITINGAnn Arbor, Michigan, 48109, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of North Carolina at Chapel Hill
RECRUITINGChapel Hill, North Carolina, 27599, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Email: •••••@•••••
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University of Pennsylvania
RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
Contact Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Southern California-Children's Hospital
RECRUITINGLos Angeles, California, 90227, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Texas-Southwestern
RECRUITINGDallas, Texas, 75390, United States
Contact Email: •••••@•••••
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University of Washington
RECRUITINGSeattle, Washington, 98195, United States
Contact Email: •••••@•••••
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Wake Forest School of Medicine
WITHDRAWNWinston-Salem, North Carolina, 27157, United States
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Washington University - St Louis
NOT_YET_RECRUITINGSt Louis, Missouri, 63110, United States
Contact Email: •••••@•••••
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York Central Hospital
COMPLETEDRichmond Hill, Ontario, L4C 4Z3, Canada
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.