Kidney disease mystery: scientists launch massive data hunt

NCT ID NCT01209000

Recruiting now Knowledge-focused Sponsor: University of Michigan Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study is for people with rare kidney diseases like Minimal Change Disease, Focal Segmental Glomerulosclerosis, and Membranous Nephropathy. Researchers will collect health information and biological samples from 1,200 participants over many years. The goal is to better understand these diseases and improve future treatments, not to test a new drug or cure.

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Conditions

The condition(s) this trial relates to.

focal segmental glomerulosclerosis lipoid nephrosis macular corneal dystrophy membranous glomerulonephritis nephrotic syndrome

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

GLOMERULOSCLEROSIS, FOCAL SEGMENTAL MEMBRANOUS NEPHROPATHY MINIMAL CHANGE DISEASE (MCD)

Contacts and locations

Locations

Atrium Health Levine Children's Hospital
RECRUITING

Charlotte, North Carolina, 28203, United States
Bellevue Hospital
RECRUITING

New York, New York, 10016, United States
CS Mott Children's Hospital, University of Michigan
RECRUITING

Ann Arbor, Michigan, 48109, United States
Children's Hospital Colorado
NOT_YET_RECRUITING

Aurora, Colorado, 80045, United States
Children's Hospital of Philadelphia
RECRUITING

Philadelphia, Pennsylvania, 19104, United States
Children's Mercy Hospital
RECRUITING

Kansas City, Missouri, 64108, United States
Cleveland Clinic
RECRUITING

Cleveland, Ohio, 44195, United States
Cohen Children's Hospital
RECRUITING

New Hyde Park, New York, 11040, United States
Columbia University Medical Center
RECRUITING

New York, New York, 10032, United States
Credit Valley Hospital
RECRUITING

Toronto, Ontario, L5M 2N1, Canada
Emory University and Children's Healthcare of Atlanta
RECRUITING

Atlanta, Georgia, 30322, United States
John Stroger Cook County Hospital
RECRUITING

Chicago, Illinois, 60680, United States
Johns Hopkins Medical Institute
RECRUITING

Baltimore, Maryland, 21287, United States
Kidney Disease Section, NIDDK, NIH
COMPLETED

Bethesda, Maryland, 20892, United States
Lundquist Biomedical Research Institute at Harbor UCLA Medical Center
RECRUITING

Torrance, California, 90502, United States
Mayo Clinic
COMPLETED

Rochester, Minnesota, 55905, United States
Medical University of South Carolina
RECRUITING

Charleston, South Carolina, 29425, United States
MetroHealth Hospital at Case Western Medical Center
COMPLETED

Cleveland, Ohio, 44109, United States
Montefiore Medical Center
RECRUITING

The Bronx, New York, 11040, United States
New York University Medical Center
RECRUITING

New York, New York, 10010, United States
New York University Veterans Administration
RECRUITING

New York, New York, 10016, United States
Providence Medical Research Center
RECRUITING

Spokane, Washington, 99204, United States
Scarborough Hospital
COMPLETED

Scarborough Village, Ontario, M1H 3G4, Canada
Seattle Children's Hospital
RECRUITING

Seattle, Washington, 98145, United States
Stanford University School of Medicine
RECRUITING

Palo Alto, California, 94304, United States
Sunnybrook Hospital
RECRUITING

Toronto, Ontario, M4N 3M5, Canada
Temple University
RECRUITING

Philadelphia, Pennsylvania, 19140, United States
Texas Children's Hospital - Baylor College of Medicine
RECRUITING

Houston, Texas, 77030, United States
The Ohio State University Wexner Medical Center
RECRUITING

Columbus, Ohio, 43210, United States
University Health Network
RECRUITING

Toronto, Ontario, M5G2C4, Canada
University Hospital Rainbow Babies & Children's Hospital
COMPLETED

Cleveland, Ohio, 44106, United States
University of California San Francisco Benioff Children's Hospitals
NOT_YET_RECRUITING

San Francisco, California, 94158, United States
University of Colorado Anschutz School of Medicine
NOT_YET_RECRUITING

Aurora, Colorado, 80045, United States
University of Kansas Medical Center
RECRUITING

Kansas City, Kansas, 66160, United States
University of Miami Miller School of Medicine
RECRUITING

Miami, Florida, 33136, United States
University of Michigan Medical Center
RECRUITING

Ann Arbor, Michigan, 48109, United States
University of North Carolina at Chapel Hill
RECRUITING

Chapel Hill, North Carolina, 27599, United States
University of Pennsylvania
RECRUITING

Philadelphia, Pennsylvania, 19104, United States
University of Southern California-Children's Hospital
RECRUITING

Los Angeles, California, 90227, United States
University of Texas-Southwestern
RECRUITING

Dallas, Texas, 75390, United States
University of Washington
RECRUITING

Seattle, Washington, 98195, United States
Wake Forest School of Medicine
WITHDRAWN

Winston-Salem, North Carolina, 27157, United States
Washington University - St Louis
NOT_YET_RECRUITING

St Louis, Missouri, 63110, United States
York Central Hospital
COMPLETED

Richmond Hill, Ontario, L4C 4Z3, Canada

More trials for these conditions

Other studies related to the condition(s) this trial covers.