New registry aims to unlock secrets of rare kidney diseases
NCT ID NCT03949972
First seen Nov 01, 2025 · Last updated May 25, 2026 · Updated 28 times
Summary
This study is creating a long-term registry of 500 people with two rare kidney conditions: focal segmental glomerulosclerosis (FSGS) and minimal change disease (MCD). Researchers will collect blood, urine, and tissue samples, along with health updates, to learn how these diseases progress and respond to treatment. The goal is to support future research that could lead to better diagnosis and care.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Locations
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Charité University Hospital
RECRUITINGBerlin, Germany
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Kindernephrologie Dachau
RECRUITINGDachau, 85221, Germany
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Kindernierenzentrum Bonn
RECRUITINGBonn, 53127, Germany
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Klinikum St. Georg
RECRUITINGLeipzig, 04129, Germany
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Klinikum Stuttgart
RECRUITINGStuttgart, 70174, Germany
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Uniklinik RWTH Aachen
NOT_YET_RECRUITINGAachen, 52074, Germany
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University Hospital Erlangen
NOT_YET_RECRUITINGErlangen, Germany
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University Hospital Essen
RECRUITINGEssen, 45147, Germany
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University Hospital Heidelberg
RECRUITINGHeidelberg, 69120, Germany
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University Hospital Marburg
RECRUITINGMarburg, Germany
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University Hospital Münster
RECRUITINGMünster, Germany
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University Hospital of Cologne
RECRUITINGCologne, North Rhine-Westphalia, 50937, Germany
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Conditions
Explore the condition pages connected to this study.