Researchers dig into bone strength in rare connective tissue disorders
NCT ID NCT07169669
First seen Nov 01, 2025 · Last updated May 18, 2026 · Updated 26 times
Summary
This study aims to understand bone mineralization and fracture risk in people with Marfan or Ehlers-Danlos syndrome. Researchers will review existing medical records and bone density scans from 150 patients. The goal is to identify patterns of bone loss and osteoporosis over time, without any new treatments or procedures.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
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