MARFAN SYNDROME
Clinical trials for MARFAN SYNDROME explained in plain language.
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Custom-Made stents offer lifeline for High-Risk aneurysm patients
Disease control Recruiting nowThis study is testing custom-made and surgeon-modified stent grafts to repair dangerous aortic aneurysms in patients who are at high risk for open surgery and cannot wait for standard devices. The goal is to see if these tailored devices can safely and effectively seal off the an…
Matched conditions: MARFAN SYNDROME
Phase: NA • Sponsor: Andres Schanzer • Aim: Disease control
Last updated Apr 02, 2026 14:57 UTC
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Can special exercise help kids with rare genetic condition?
Symptom relief Recruiting nowThis study is testing whether a 6-month personalized exercise program can help children and teenagers with Marfan syndrome build endurance and improve their quality of life. Researchers will work with 30 young patients to create physical activities that fit into their daily routi…
Matched conditions: MARFAN SYNDROME
Phase: NA • Sponsor: University Hospital, Toulouse • Aim: Symptom relief
Last updated Apr 01, 2026 14:41 UTC
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Brazil launches national gene hunt for heart disease families
Knowledge-focused Recruiting nowThis study aims to create a national registry of Brazilian patients with inherited heart conditions to understand which genes are involved and how common different genetic changes are in the population. Researchers will collect medical information and DNA samples from 600 partici…
Matched conditions: MARFAN SYNDROME
Sponsor: Hospital do Coracao • Aim: Knowledge-focused
Last updated Apr 03, 2026 14:42 UTC
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Scientists gather clues to unlock marfan syndrome mysteries
Knowledge-focused Recruiting nowThis study aims to collect blood and urine samples from 300 people with Marfan syndrome or related conditions. The samples will be stored for future research to better understand how the disease progresses and what factors might predict its severity. Participants will provide ext…
Matched conditions: MARFAN SYNDROME
Sponsor: University Hospital, Toulouse • Aim: Knowledge-focused
Last updated Mar 27, 2026 12:40 UTC