MARFAN SYNDROME
Clinical trials for MARFAN SYNDROME explained in plain language.
Never miss a new study
Get alerted when new MARFAN SYNDROME trials appear
Sign up with your email to follow new studies for MARFAN SYNDROME, keep track of the ones that matter, and come back to a personal dashboard instead of checking manually.
Genom att skicka in godkänner du våra Användarvillkor
-
Exercise program shows promise for marfan syndrome patients
Symptom relief CompletedThis study tested a personalized exercise rehabilitation program in 28 children and young adults (under 25) with Marfan syndrome, a rare genetic condition affecting the heart, eyes, and bones. The goal was to see if tailored training could improve endurance, muscle strength, and …
Matched conditions: MARFAN SYNDROME
Phase: NA • Sponsor: University Hospital, Toulouse • Aim: Symptom relief
Last updated May 22, 2026 13:51 UTC
-
Snap & scribble: new study tests creative therapy for rare disease
Symptom relief CompletedThis small study looked at whether taking photos and writing about their experiences can help people with Marfan syndrome cope with their condition. Eight participants tried these creative activities and shared their thoughts in interviews. The goal was to see if these methods co…
Matched conditions: MARFAN SYNDROME
Phase: NA • Sponsor: IRCCS Policlinico S. Donato • Aim: Symptom relief
Last updated May 18, 2026 12:07 UTC
-
Marfan study digs into back pain and daily limits
Knowledge-focused CompletedThis study looked at 90 adults with Marfan syndrome to see if those with a spinal condition called dural ectasia have more back pain, headaches, or trouble with daily activities compared to those without it. Researchers measured symptoms like pain when standing or straining, and …
Matched conditions: MARFAN SYNDROME
Sponsor: Assistance Publique - Hôpitaux de Paris • Aim: Knowledge-focused
Last updated May 26, 2026 05:34 UTC
-
Marfan Patients' mental health after heart surgery under the microscope
Knowledge-focused CompletedThis study looked at how heart surgery impacts the mental health, well-being, and quality of life of adults with Marfan Syndrome, a genetic condition that weakens the body's connective tissues. Researchers asked 28 participants to fill out questionnaires about their mood, fatigue…
Matched conditions: MARFAN SYNDROME
Sponsor: Barts & The London NHS Trust • Aim: Knowledge-focused
Last updated May 26, 2026 04:38 UTC
-
Gene-Face link in rare syndromes revealed by orthodontic study
Knowledge-focused CompletedThis study looked at 39 children aged 4 to 18 with Marfan or Loeys-Dietz syndromes to see if their specific gene changes were linked to differences in face and jaw shape. Researchers used dental X-rays to measure bone positions and compared groups based on their genetic variants.…
Matched conditions: MARFAN SYNDROME
Sponsor: Andrea Scribante • Aim: Knowledge-focused
Last updated May 15, 2026 11:53 UTC