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Marfan Patients' hidden struggles after heart surgery revealed

NCT ID NCT04776681

Knowledge-focused Sponsor: Barts & The London NHS Trust Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed This study
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study looked at how heart surgery impacts the mental health, well-being, and quality of life of adults with Marfan Syndrome. Researchers asked 28 patients to fill out questionnaires about depression, fatigue, pain, and self-esteem before surgery and at several points after. The goal is to better understand these effects so that future support can be improved.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

28 people

The number who actually took part.

Started

Jul 2021

Finished

Dec 2025

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

All eligible consecutive patients with a diagnosis of MFS at three large UK cardiac centres will be identified prior to surgery, either through pre-operative outpatient clinic or via the clinical team.

Ages

18 to 120 years

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: 1. \>/= 18 years old at the time of surgery; 2. have validated diagnosis of MFS (using revised Ghent criteria); 3. having aorto-vascular surgery Exclusion Criteria: 1. \<18years old at the time of surgery 2. Unable or unwilling to give written informed consent. 3. Inability to understand written and/or verbal English

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Conditions

The condition(s) this trial relates to.

Marfan syndrome

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Marfan syndrome Marfan syndrome cardiovascular manifestations

Contacts and locations

Locations

  • St Bartholomews Hospital

    London, EC1A 7BE, United Kingdom

More trials for these conditions

Other studies related to the condition(s) this trial covers.