MARFAN SYNDROME
Clinical trials for MARFAN SYNDROME explained in plain language.
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Could a keto diet prevent aortic surgery in marfan patients?
Disease control Not yet recruitingThis pilot study tests whether a carefully supervised ketogenic diet can help 15 adults with Marfan syndrome who have a chronic aortic dissection. Participants will follow the diet for 12 months while continuing their usual heart medications. The main goal is to see if the diet h…
Matched conditions: MARFAN SYNDROME
Phase: NA • Sponsor: Washington University School of Medicine • Aim: Disease control
Last updated May 22, 2026 13:54 UTC
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What keeps marfan patients from being active? new study aims to find out
Knowledge-focused Not yet recruitingThis study will measure how active adults with Marfan syndrome are and explore what clinical and emotional factors—like fear of injury, fatigue, or pain—may limit their activity. Researchers will survey 118 adults using online questionnaires. The goal is to better understand why …
Matched conditions: MARFAN SYNDROME
Sponsor: University of Oviedo • Aim: Knowledge-focused
Last updated May 26, 2026 04:39 UTC
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Researchers dig into bone strength in rare connective tissue disorders
Knowledge-focused Not yet recruitingThis study aims to understand bone mineralization and fracture risk in people with Marfan or Ehlers-Danlos syndrome. Researchers will review existing medical records and bone density scans from 150 patients. The goal is to identify patterns of bone loss and osteoporosis over time…
Matched conditions: MARFAN SYNDROME
Sponsor: IRCCS Policlinico S. Donato • Aim: Knowledge-focused
Last updated May 19, 2026 12:00 UTC