Global wolfram syndrome registry launches to map rare Disease's course
NCT ID NCT02841553
First seen Jan 04, 2026 · Last updated May 14, 2026 · Updated 17 times
Summary
This study is building a worldwide registry of people with Wolfram syndrome, a rare genetic disorder that causes diabetes, vision loss, hearing loss, and other problems. Researchers will collect medical history and genetic information from up to 5,000 participants to better understand how the disease progresses. No new treatments are being tested; the goal is to gather knowledge that could help design future studies and improve care.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Locations
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Washington University School of Medicine
RECRUITINGSt Louis, Missouri, 63110, United States
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Conditions
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