Global hunt for clues in rare, devastating genetic disease
NCT ID NCT02841553
Summary
This study is creating a worldwide registry of people with Wolfram syndrome, a rare genetic disorder that causes childhood diabetes, vision loss, deafness, and other serious problems. Researchers will collect health information and blood/urine samples from up to 5,000 participants to track how the disease progresses over time. The goal is to better understand this condition and find clues that could lead to future treatments for Wolfram syndrome and more common diseases like diabetes.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Washington University School of Medicine
RECRUITINGSt Louis, Missouri, 63110, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Conditions
Explore the condition pages connected to this study.