Virtual genome center aims to close genetic care gap for newborns
NCT ID NCT05205356
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study is testing a virtual genome center (VIGOR) to help sick newborns in community hospitals get genetic testing and expert advice without traveling to a big specialty center. The goal is to see if this approach works well and can be used more widely, especially for low-income and minority families. The study will enroll 750 newborns with suspected genetic conditions in the NICU and track how many families take part and how doctors use the results.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this could show how to bring advanced genetic medicine to underserved communities, improving care for sick newborns.
What could go wrong
This is an early-stage implementation study, not testing a treatment. It may not lead to direct health improvements or be scalable.
Disclaimer
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
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Locations
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Baystate Medical Center
RECRUITINGSpringfield, Massachusetts, 01199, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Boston Medical Center
RECRUITINGBoston, Massachusetts, 02118, United States
Contact Email: •••••@•••••
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Cooper University Hospital
RECRUITINGCamden, New Jersey, 08103, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Driscoll Children's Hospital Rio Grande Valley
RECRUITINGEdinburg, Texas, 78539, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Holtz Children's Hospital at Jackson Memorial Medical Center
RECRUITINGMiami, Florida, 33136, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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The Hospitals of Providence
RECRUITINGEl Paso, Texas, 79938, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Contact Email: •••••@•••••
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The Women's Hospital at Renaissance
RECRUITINGEdinburg, Texas, 78539, United States
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UMass Memorial Hospital
RECRUITINGWorcester, Massachusetts, 01605, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
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USA Children's and Women's Hospital
RECRUITINGMobile, Alabama, 36604, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Texas Medical Branch
RECRUITINGGalveston, Texas, 77555, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact