Virtual genome center aims to end genetic care disparities for newborns
NCT ID NCT05205356
First seen Feb 03, 2026 · Last updated May 07, 2026 · Updated 18 times
Summary
This study tests a virtual genome center (VIGOR) to help sick newborns in community hospitals get expert genetic care without traveling to specialized centers. It will enroll 750 babies with suspected genetic conditions in the NICU, focusing on low-income and minority families. The goal is to see if this approach improves access, education, and genetic testing for those who often miss out.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
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Locations
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Baystate Medical Center
RECRUITINGSpringfield, Massachusetts, 01199, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Boston Medical Center
RECRUITINGBoston, Massachusetts, 02118, United States
Contact Email: •••••@•••••
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Cooper University Hospital
RECRUITINGCamden, New Jersey, 08103, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Driscoll Children's Hospital Rio Grande Valley
RECRUITINGEdinburg, Texas, 78539, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Holtz Children's Hospital at Jackson Memorial Medical Center
RECRUITINGMiami, Florida, 33136, United States
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The Hospitals of Providence
RECRUITINGEl Paso, Texas, 79938, United States
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Contact Email: •••••@•••••
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The Women's Hospital at Renaissance
RECRUITINGEdinburg, Texas, 78539, United States
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UMass Memorial Hospital
RECRUITINGWorcester, Massachusetts, 01605, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
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USA Children's and Women's Hospital
RECRUITINGMobile, Alabama, 36604, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Texas Medical Branch
RECRUITINGGalveston, Texas, 77555, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Conditions
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