New national registry aims to unlock secrets of Ultra-Rare childhood cancers

This study creates a registry for children, teens, and young adults (ages 1 month to 39 years) diagnosed with very rare solid tumors (fewer than 2 cases per million people per year). Researchers will collect medical records, tumor samples, and patient questionnaires to better understand these cancers. No clinic visits are needed; participation is by phone or mail. The goal is to gather data that could lead to future treatments.