New registry aims to unlock secrets of Ultra-Rare childhood cancers
NCT ID NCT07489378
First seen Apr 04, 2026 · Last updated May 15, 2026 · Updated 7 times
Summary
This study is creating a registry of children, teens, and young adults (ages 1 month to 39 years) who have been diagnosed with a very rare solid tumor within the past year. Researchers will collect medical records, leftover tumor samples for genetic testing, and annual questionnaires for 5 years. No clinic visits are needed; participation is by phone or mail. The goal is to gather enough data to help develop future treatments for these extremely rare cancers.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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