New website aims to boost social skills for teens with narcolepsy

NCT ID NCT06251063

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study tested a website designed to help teenagers with narcolepsy or idiopathic hypersomnia and their families understand and improve social relationships. Twenty-five teens and their parents reviewed the website's content, which included animations, patient stories, and expert advice. The goal was to see if the website was easy to use and helpful, and to measure any changes in the teens' social health.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance

web-based psychoeducational resource

What this could lead to

If successful, this resource could help teens with sleep disorders build better social connections and improve their quality of life.

What could go wrong

This is a small, completed study focused on usability, not on proving the resource works. It may not lead to broad changes in social health.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

idiopathic hypersomnia narcolepsy without cataplexy narcolepsy-cataplexy syndrome

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Boston Children's Hospital

    Boston, Massachusetts, 02115, United States