New online program aims to help scleroderma patients take control of their symptoms

NCT ID NCT04246528

Completed Symptom relief Sponsor: Lady Davis Institute Source: ClinicalTrials.gov ↗

First seen Jun 26, 2026 · Last updated Jun 26, 2026

Summary

This trial tests an online self-management program for people with scleroderma (systemic sclerosis). Participants watch videos of patients and health professionals teaching techniques to manage pain, fatigue, skin issues, and more. The program also includes group video calls led by trained peers. The goal is to see if the program boosts patients' confidence in managing their disease compared to usual care alone.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance: SPIN-SELF Program (online self-management modules with peer-led videoconference group sessions)
What this could lead to: If successful, this program could help people with scleroderma feel more confident managing their symptoms and improve their quality of life.
What could go wrong: This is an early feasibility study with a small number of participants, so results may not apply to everyone. The program requires internet access and group participation, which may not suit all patients.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for SCLERODERMA are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Conditions

The condition(s) this trial relates to.

diffuse scleroderma scleroderma systemic sclerosis

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

SCLERODERMA SYSTEMIC SCLEROSIS

Contacts and locations

Locations

Jewish General Hospital

Montreal, Quebec, H3T 1E3, Canada

More trials for these conditions

Other studies related to the condition(s) this trial covers.