New study tracks retinoblastoma survivors to uncover Long-Term health secrets
NCT ID NCT03932786
First seen Sep 30, 2025 · Last updated Apr 24, 2026 · Updated 28 times
Summary
This study follows 900 people with retinoblastoma and their family members over time to understand long-term health outcomes. Researchers collect vision tests, tissue and saliva samples, and questionnaires to learn what causes the disease and which treatments work best. Participants must have been diagnosed before age 18 and be at least 6 months past treatment.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Children's Hospital of Philadelphia
RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
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Contact Email: •••••@•••••
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Children's Hospital of Wisconsin
RECRUITINGMilwaukee, Wisconsin, 53226, United States
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Cincinnati Children's Hospital Medical Center
RECRUITINGCincinnati, Ohio, 45229, United States
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Lurie Children's Hospital
RECRUITINGChicago, Illinois, 60611, United States
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MD Anderson Cancer Center
RECRUITINGHouston, Texas, 77030, United States
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Contact Email: •••••@•••••
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Texas Childeren's Hospital
RECRUITINGHouston, Texas, 77030, United States
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The Hosptial for Sick Children
RECRUITINGToronto, Canada
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University of Illinois, Chicago
RECRUITINGChicago, Illinois, 60612, United States
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University of Minnesoa
RECRUITINGMinneapolis, Minnesota, 55455, United States
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Contact Email: •••••@•••••
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Vanderbilt-Ingram Cancer Center
RECRUITINGNashville, Tennessee, 37232, United States
Contact Phone: •••-•••-••••
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Washington School of Medicine at St. Louis
RECRUITINGSt Louis, Missouri, 63110, United States
Contact Email: •••••@•••••
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Conditions
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