Massive study tracks retinoblastoma survivors to uncover hidden risks
NCT ID NCT03932786
First seen Sep 30, 2025 · Last updated May 20, 2026 · Updated 34 times
Summary
This study follows 900 people who had retinoblastoma as children, along with their family members, to learn about long-term health outcomes. Researchers will collect vision tests, tissue and saliva samples, and surveys over time. The goal is to understand what causes the disease, identify late effects of treatment, and find which therapies work best.
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Children's Hospital of Philadelphia
RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
Contact
Contact Email: •••••@•••••
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Children's Hospital of Wisconsin
RECRUITINGMilwaukee, Wisconsin, 53226, United States
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Contact Email: •••••@•••••
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Cincinnati Children's Hospital Medical Center
RECRUITINGCincinnati, Ohio, 45229, United States
Contact Email: •••••@•••••
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Lurie Children's Hospital
RECRUITINGChicago, Illinois, 60611, United States
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Contact Email: •••••@•••••
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MD Anderson Cancer Center
RECRUITINGHouston, Texas, 77030, United States
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Contact Email: •••••@•••••
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Texas Childeren's Hospital
RECRUITINGHouston, Texas, 77030, United States
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Contact Email: •••••@•••••
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The Hosptial for Sick Children
RECRUITINGToronto, Canada
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Contact Email: •••••@•••••
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University of Illinois, Chicago
RECRUITINGChicago, Illinois, 60612, United States
Contact Email: •••••@•••••
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University of Minnesoa
RECRUITINGMinneapolis, Minnesota, 55455, United States
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Contact Email: •••••@•••••
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Vanderbilt-Ingram Cancer Center
RECRUITINGNashville, Tennessee, 37232, United States
Contact Phone: •••-•••-••••
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Washington School of Medicine at St. Louis
RECRUITINGSt Louis, Missouri, 63110, United States
Contact Email: •••••@•••••
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Conditions
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