Massive european study launches to unlock secrets of rare head and neck cancers
NCT ID NCT05483374
First seen Jun 24, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This large observational registry aims to collect data from over 13,000 adults across Europe with rare head and neck cancers, including cancers of the nasopharynx, nasal cavity, salivary glands, and middle ear. Researchers will track patient outcomes like survival, treatment response, and side effects to better understand these uncommon diseases. The goal is to improve future care by identifying factors that influence prognosis and treatment effectiveness.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- What this could lead to
- If successful, this registry could improve understanding of rare head and neck cancers, leading to better treatment guidelines and care.
- What could go wrong
- This is an observational study, not a treatment trial. It collects existing data, so it cannot directly test new therapies or prove cause and effect.
This is an AI summary of the original study and may miss details. Read our disclaimer.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Centro Nazionale di Adroterapia Oncologica
RECRUITINGPavia, Pavia, 27100, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Fondazione IRCCS Istituto Nazionale dei Tumori
RECRUITINGMilan, Milan, 20133, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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IRCCS Istituto Clinica Humanitas
RECRUITINGRozzano, Milano, 20089, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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IRCCS Istituto Europeo di Oncologia
RECRUITINGMilan, Milano, 20141, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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IRCCS Istituto Nazionale Tumori Regina Elena
RECRUITINGRoma, Roma, 00144, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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IRCCS Ospedale Policlinico San Martino
RECRUITINGGenova, Genova, 16132, Italy
Contact Email: •••••@•••••
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IRCCS Ospedale San Raffaele
RECRUITINGMilan, Milano, 20132, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Masaryk Memorial Cancer Institute
NOT_YET_RECRUITINGBrno, Brno, 656 53, Czechia
Contact Email: •••••@•••••
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Nuovo Ospedale di Prato - S. Stefano
NOT_YET_RECRUITINGPrato, Prato, 59100, Italy
Contact Email: •••••@•••••
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University Hospital Essen
NOT_YET_RECRUITINGEssen, Hesse, 45147, Germany
Contact Email: •••••@•••••
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