Large study digs into rare brain tumors to uncover clues

NCT ID NCT03251989

First seen Jun 26, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study gathered information from 326 adults with rare central nervous system tumors, such as medulloblastoma and ependymoma. Participants completed surveys about their symptoms, treatments, and lifestyle, and provided a saliva sample for genetic analysis. The goal was to learn more about what causes these rare tumors and how they affect people, which could guide future research.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

brain cancer central nervous system cancer Choroid Plexus Neoplasms ependymoma glioma grade III meningioma medulloblastoma Neuroectodermal Tumors, Primitive primitive neuroectodermal tumor rhabdoid tumor

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • National Cancer Institute (NCI)/ Neuro-Oncology Branch

    Bethesda, Maryland, 20892, United States