New study tracks rare liver disease in kids to uncover clues
NCT ID NCT04181138
First seen Nov 01, 2025 · Last updated May 07, 2026 · Updated 29 times
Summary
This study follows 1,000 children with primary sclerosing cholangitis (PSC), a rare liver disease that damages bile ducts. Researchers will collect medical data, DNA, and other samples to understand how PSC progresses and affects daily life. The goal is to identify factors that make the disease worse, not to test a new treatment.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Locations
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Ann & Robert H Lurie Children's Hospital
RECRUITINGChicago, Illinois, 60611, United States
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Children's Healthcare of Atlanta
RECRUITINGAtlanta, Georgia, 30322, United States
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Children's Hospital Colorado
RECRUITINGAurora, Colorado, 80045, United States
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Children's Hospital of Los Angeles
RECRUITINGLos Angeles, California, 90027, United States
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Cincinnati Children's Hospital Medical
RECRUITINGCincinnati, Ohio, 45229, United States
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Riley Hospital for Children
COMPLETEDIndianapolis, Indiana, 46202, United States
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Seattle Children's Hospital
RECRUITINGSeattle, Washington, 98105, United States
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Texas Children's Hospital (Baylor College of Medicine)
RECRUITINGHouston, Texas, 77030, United States
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The Children's Hospital of Philadelphia
RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
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The Hospital for Sick Children
COMPLETEDToronto, Ontario, M5G 1X8, Canada
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The University of Utah
RECRUITINGSalt Lake City, Utah, 84113, United States
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UPMC Children's Hospital of Pittsburgh
RECRUITINGPittsburgh, Pennsylvania, 15224, United States
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Conditions
Explore the condition pages connected to this study.