New study tracks rare liver disease in kids to uncover clues
NCT ID NCT04181138
First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This study follows 1,000 children with primary sclerosing cholangitis (PSC), a rare liver disease that damages bile ducts. Researchers will collect medical data, DNA, and symptom reports over time to understand how the disease progresses and affects daily life. The goal is to identify factors that may speed up the disease, helping doctors better manage it in the future.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this study could help doctors better understand PSC in children and identify factors that predict faster disease progression.
What could go wrong
This is an observational study, not a treatment trial, so it won't directly improve health. Results may take years and might not lead to new therapies.
Disclaimer
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Locations
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Ann & Robert H Lurie Children's Hospital
RECRUITINGChicago, Illinois, 60611, United States
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Children's Healthcare of Atlanta
RECRUITINGAtlanta, Georgia, 30322, United States
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Children's Hospital Colorado
RECRUITINGAurora, Colorado, 80045, United States
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Children's Hospital of Los Angeles
RECRUITINGLos Angeles, California, 90027, United States
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Cincinnati Children's Hospital Medical
RECRUITINGCincinnati, Ohio, 45229, United States
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Riley Hospital for Children
COMPLETEDIndianapolis, Indiana, 46202, United States
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Seattle Children's Hospital
RECRUITINGSeattle, Washington, 98105, United States
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Texas Children's Hospital (Baylor College of Medicine)
RECRUITINGHouston, Texas, 77030, United States
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The Children's Hospital of Philadelphia
RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
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The Hospital for Sick Children
COMPLETEDToronto, Ontario, M5G 1X8, Canada
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The University of Utah
RECRUITINGSalt Lake City, Utah, 84113, United States
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UPMC Children's Hospital of Pittsburgh
COMPLETEDPittsburgh, Pennsylvania, 15224, United States