Huntington disease survey aims to make clinical trials more Participant-Friendly

NCT ID NCT06343220

Completed Knowledge-focused Sponsor: Huntington Study Group Source: ClinicalTrials.gov ↗

First seen Jun 24, 2026 · Last updated Jun 27, 2026 · Updated 2 times

Summary

This completed survey study asked 131 people with or at risk for Huntington disease about their feelings, attitudes, and beliefs toward clinical research. The goal is to help researchers design better studies that are more aware of participants' needs. No treatment or drug was tested.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this survey could help researchers design more participant-friendly clinical trials for Huntington disease.
What could go wrong: This is a completed survey study, not a treatment trial. It does not test any drug or therapy, so it cannot directly improve health.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

Charcot-Marie-Tooth disease type 2A2 Huntington disease

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

HUNTINGTON DISEASE

Contacts and locations

Locations

Huntington Study Group

Rochester, New York, 14618, United States

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