New imaging test could spot rare childhood disease sooner

NCT ID NCT04943211

First seen Jun 24, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study aims to improve how doctors diagnose and monitor histiocytosis, a rare disease that causes abnormal cell growth, in children under 18. Researchers will use a special imaging agent called fluorodeoxyglucose (18F-FDG) in PET-CT scans, along with genetic testing of tumor tissue and blood. The goal is to see how well these methods track the disease over time, potentially leading to earlier detection and better outcomes.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance

fluorodeoxyglucose (18F-FDG)

What this could lead to

If successful, this could lead to better, earlier detection of histiocytosis in children and more precise monitoring of the disease.

What could go wrong

This is a single-center, early-phase trial focused on imaging, not treatment. The results may not apply broadly, and the imaging agent carries standard radiation risks.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for HISTIOCYTOSIS are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Conditions

The condition(s) this trial relates to.

histiocytosis Histiocytosis, Langerhans-Cell

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Mother and Child Institute

    RECRUITING

    Warsaw, Mazovian, 01-211, Poland

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••