Massive study tracks hidden toll of rare immune diseases
NCT ID NCT05915208
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study follows 6,000 people with histiocytic disorders (like Langerhans cell histiocytosis) to understand long-term health problems, pain, mental health, and causes of death. Researchers compare participants to healthy controls to identify factors that lead to new health issues. The goal is to improve care and quality of life for those affected.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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University of Alabama at Birmingham
RECRUITINGBirmingham, Alabama, 35233, United States
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