Study uncovers hidden struggles of rare skin disease patients
NCT ID NCT02237313
Summary
This study aimed to understand what makes pemphigus patients feel vulnerable during their illness journey. Researchers interviewed 48 patients to learn about their psychological experiences, how they cope with diagnosis, and their interactions with healthcare providers. The goal was to identify factors that could help improve support and care for people living with this chronic skin condition.
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Contacts and locations
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Locations
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CH du Mans
Le Mans, 72037, France
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CHRU de Lille Hôpital Claude Huriez
Lille, 59037, France
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CHU de Clermont-Ferrand Hôpital d'Estaing
Clermont-Ferrand, 63003, France
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Centre hospitalier de Cornouaille
Quimper, 29107, France
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Hôpital Avicenne
Bobigny, 93000, France
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Hôpital Haut-Lévêque
Pessac, 33604, France
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Hôpital La Timone, Assistance publique hôpitaux de Marseille-Aix
Marseille, France
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Hôpital Robert Debré, chu de Reims
Reims, 51 092, France
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University Hospital of Rouen
Rouen, 76031, France
Conditions
Explore the condition pages connected to this study.