Pemphigus study digs into hidden emotional struggles
NCT ID NCT02237313
First seen Jun 26, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This study looked at 48 adults with pemphigus, a rare blistering skin disease, to understand what makes them feel vulnerable during their illness. Researchers used interviews and questionnaires to explore factors like misdiagnosis, differences in how patients and doctors see disease severity, and how patients use health information. The goal was to identify patterns that could help improve support for patients.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this could help doctors identify which pemphigus patients need extra psychological support, leading to better overall care.
What could go wrong
This is a small, completed observational study (48 people) that only identifies factors—it does not test a treatment, so it won't directly change outcomes.
Disclaimer
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
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CH du Mans
Le Mans, 72037, France
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CHRU de Lille Hôpital Claude Huriez
Lille, 59037, France
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CHU de Clermont-Ferrand Hôpital d'Estaing
Clermont-Ferrand, 63003, France
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Centre hospitalier de Cornouaille
Quimper, 29107, France
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Hôpital Avicenne
Bobigny, 93000, France
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Hôpital Haut-Lévêque
Pessac, 33604, France
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Hôpital La Timone, Assistance publique hôpitaux de Marseille-Aix
Marseille, France
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Hôpital Robert Debré, chu de Reims
Reims, 51 092, France
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University Hospital of Rouen
Rouen, 76031, France