Pemphigus study digs into hidden emotional struggles

NCT ID NCT02237313

Completed Knowledge-focused Sponsor: University Hospital, Rouen Source: ClinicalTrials.gov ↗

First seen Jun 26, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study looked at 48 adults with pemphigus, a rare blistering skin disease, to understand what makes them feel vulnerable during their illness. Researchers used interviews and questionnaires to explore factors like misdiagnosis, differences in how patients and doctors see disease severity, and how patients use health information. The goal was to identify patterns that could help improve support for patients.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this could help doctors identify which pemphigus patients need extra psychological support, leading to better overall care.
What could go wrong: This is a small, completed observational study (48 people) that only identifies factors—it does not test a treatment, so it won't directly change outcomes.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

pemphigus pemphigus vulgaris skin disorder

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

DERMATOLOGICAL DISEASE PEMPHIGUS

Contacts and locations

Locations

CH du Mans

Le Mans, 72037, France
CHRU de Lille Hôpital Claude Huriez

Lille, 59037, France
CHU de Clermont-Ferrand Hôpital d'Estaing

Clermont-Ferrand, 63003, France
Centre hospitalier de Cornouaille

Quimper, 29107, France
Hôpital Avicenne

Bobigny, 93000, France
Hôpital Haut-Lévêque

Pessac, 33604, France
Hôpital La Timone, Assistance publique hôpitaux de Marseille-Aix

Marseille, France
Hôpital Robert Debré, chu de Reims

Reims, 51 092, France
University Hospital of Rouen

Rouen, 76031, France

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