Global PCD data pool aims to unlock secrets of rare lung disease
NCT ID NCT03517865
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study collects medical information from 3400 people with primary ciliary dyskinesia (PCD) around the world. Researchers will look at symptoms, lung function, growth, and test results to better understand how the disease affects people over time. The goal is to learn more about the condition and improve future care.
This is an AI summary of the original study and may miss details. Read our disclaimer.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for KARTAGENER SYNDROME are added.
By submitting, you agree to our Terms of use
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Locations
-
University of Bern
Bern, 3012, Switzerland
More trials for these conditions
Other studies related to the condition(s) this trial covers.
- Could exercise be a new way to clear lungs in PCD?
- Can better testing unlock the secrets of a rare lung disease?
- Scientists hunt for genes that protect the lungs
- Tiny hairs in fallopian tubes may hold key to ectopic pregnancy
- Could a simple saltwater mist make breathing easier for lung patients?
- Rare lung disease study aims to uncover key health markers